About a week ago, I was stressed over a cold my daughter was fighting. I never imagined how I’d take the sleep deprivation and crying over what turned out to be one of the scariest moments I’ve had since being a mom.
Our baby girl who is just 15 months old was diagnosed with Febrile Seizures earlier in the month. I immersed myself in the literature about the condition and set my mind at ease as best as possible. Long story short, if she has a fever, we get her cooled down as fast as possible but be prepared for a seizure. Nothing could prepare us to what happened last Friday morning.
Her fever had not subsided as we hoped and last Thursday short seizures kept occurring. We visited our little boo’s regular doctor and she was prescribed a medication to stop the seizures or at least slow them down. We were scheduled for an EEG the next day. That test would show us the kind of seizures she was having and if she was epileptic.
She played the night before the test but by Friday morning the seizures were back with a vengeance. We have come to know the cry and screams she lets out after each seizure. It’s distinct. Moms know the sounds of their babies.
At 5 AM, I heard that sound come over her monitor. I ran into her room only to see her little 21 lb. body in her pink pajamas convulsing helplessly in her crib. Her temperature spiked and she was burning up. In between the convulsions, I stripped her down and gave her meds to get the fever down. I ran her outside to cool her down and applied cold clothes to her hot body.
My hubby started to call her doctor’s exchange but the seizures kept coming one after the other. Longer, harder and more severe. I sobbed. He sobbed. We were helpless. He called 9-1-1.
It took the paramedics and firemen about four minutes to get to the house. It was the longest four minutes of our lives. By the time they arrived, her body temperature came down and the seizures stopped.
At the hospital, they completed a CT Scan, EEG and spinal tap along with a lot of blood work. It was the most excruciating 5 hours. Our baby scared and her parents petrified.
By that evening, we knew the seizures were caused by high fever and she was not likely to have epilepsy. The mystery for us became… Why the fever? Why had the fever and illness lasted so long?
We were admitted that day to find out what our little boo was fighting.